Frequency distribution of patients' knowledge about the disease and its treatment
| Question | Correct (%) | Incomplete (%) | Does not know (%) | Incorrect (%) |
| What is the name of your heart defect? | 61.3 (59.8 to 62.8) | 4.8 (4.1 to 5.5) | 14.5 (13.4 to 15.6) | 19.4 (18.2 to 20.7) |
| Describe or indicate on the diagram where your heart defect is located | 50.0 (48.4 to 51.6) | 11.3 (10.3 to 12.3) | 19.4 (18.2 to 20.7) | 19.4 (18.2 to 20.7) |
| How often do you have to come to the clinic for follow up for your congenital heart disease? | 96.8 (96.2 to 97.4) | – | 0.0 (0.0 to 0.0) | 3.2 (2.6 to 3.8) |
| What is the main purpose of the follow up? | 48.4 (46.8 to 50.0) | 48.4 (46.8 to 50.0) | 0.0 (0.0 to 0.0) | 3.2 (2.6 to 3.8) |
| If the congenital cardiologist informs you that everything is alright, does that mean that you don't need further follow up? | 98.4 (98.0 to 98.8) | – | 1.6 (1.2 to 2.0) | 0.0 (0.0 to 0.0) |
| How has your heart condition been treated to date? | 95.2 (94.5 to 95.9) | 1.6 (1.2 to 2.0) | 1.6 (1.2 to 2.0) | 1.6 (1.2 to 2.0) |
| If you are on drug treatment, give the name, dose, schedule, reason or function, most important side effects, and interactions with other drugs or foods (n=9) | 77.8 (68.8 to 86.9) | 11.1 (4.3 to 17.9) | 0.0 (0.0 to 0.0) | 11.1 (4.3 to 17.9) |
| If you experience side effects of your drugs, does this mean you should stop taking them? | 88.9 (82.1 to 95.7) | – | 11.1 (4.3 to 17.9) | 0.0 (0.0 to 0.0) |
| Do you have to follow a diet? If you answer yes, please indicate the type of diet | 98.4 (98.0 to 98.8) | 0.0 (0.0 to 0.0) | 0.0 (0.0 to 0.0) | 1.6 (1.2 to 2.0) |
| Mark all symptoms which may occur if your heart condition deteriorates and for which you have to contact your cardiologist | 30.6 (29.1 to 32.1) | 58.1 (56.5 to 59.7) | 11.3 (10.3 to 12.3) | 0.0 (0.0 to 0.0) |
Values are percentage (95% confidence interval).