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Performance of the EuroQol in children with imperforate anus

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Abstract

Objective: To investigate the feasibility and validity of a proxy version of the EuroQol in children treated for imperforate anus. Methods: Patients included were between 1 and 51 years of age. Instruments included were the EuroQol, the TACQOL and a disease specific questionnaire, the Langemeijer Stool Questionnaire. Patients older than 15 years filled in all questionnaires themselves, in the age groups 5–10 and 11–15 a parent administered the questionnaires. Feasibility was judged on the number of missing values. In search of validity, EuroQol scores were compared with the prevalence of disease symptoms (convergent validity) and with the TACQOL (construct validity). Results: The number of missings was not related to age. The disease specific questionnaire correlated significantly with the EQvas from 11 years on and with the EQ-5Dindex from 5 years on. The mean correlation between contextual similar domains of the EuroQol and the TACQOL was −0.55. The correlation between different domains was −0.32. Conclusion: The results support the idea that the use of a proxy version of the EuroQol is feasible and valid. The convergent validity of the EQvas was supported from 11 years on. The EQ-5D showed good construct and convergent validity from 5 years on.

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References

  1. Theunissen NCM, Vogels TGC, Koopman HM, Verrips GHW, Zwinderman KAH, Verloove-Vanhorick SP. The proxy problem: child report versus parent report in health-related quality of life research. Quality Life Res1998; 7: 387–397.

    Google Scholar 

  2. Brooks R. EuroQol: the current state of play. Health Policy 1996; 37: 53–72.

    Google Scholar 

  3. Vogels T, Verrips GHW, Verloove-Vanhorick SP, et al. Measuring health-related quality-of-life in children: the development of the TACQOL parent form. Quality Life Res 1998; 7: 457–465.

    Google Scholar 

  4. Gold MR, Siegel JE, Russell LB, Weinstein MC. Cost-effectiveness in health and medicine. New York: Oxford University Press, 1996.

    Google Scholar 

  5. Vogels T, Verrips GHW, Koopman HM, Theunissen NCCN, Fekkes M, Kamphuis RP. TACQOL Parent Form and Child Form; Manual (concept). Leiden: Leiden Child Center for Child Health and Paediatrics, 1998.

    Google Scholar 

  6. Froberg DG, Kane RL. Methodology for measuring health-state preferences – 1: scaling methods. J Clin Epidemiol 1989; 42: 345–354.

    Google Scholar 

  7. Streiner DL, Norman GR. Health measurement scales. A practical guide to their development and use. Oxford: Oxford University Press, 1995.

    Google Scholar 

  8. Ditesheim JA, Templeton JM. Short-term versus long-term quality of life in children following repair of high imperforate anus. J Ped Surg 1987; 22: 581–587.

    Google Scholar 

  9. Ludman L, Spitz L. Psychosocial adjustment of children treated for anorectal anomalies. J Ped Surg 1995; 30: 495–499.

    Google Scholar 

  10. Takayanagi K, Suruga K. New approaches to assess Quality of Life in Neonatal Surgical Cases: Medical Provider's Subjective Assessment of Disease and Condition related Factors, Using the Linear Analogue Scale. J Ped Surg 1994; 29: 659–662.

    Google Scholar 

  11. EuroQol Group. EQ-5D User Guide. A measure of health-related quality of life developed by the EuroQol Group. In: EuroQol-Group, ed, 1996.

  12. Hadorn DC, Hays RD. Multitrait-Multimethod Analysis of Health-Related Quality-of-Life Measures. Med Care 1991; 29: 829–840.

    Google Scholar 

  13. Dolan P. Modeling valuations for the EuroQol health states. Med Care 1997; 35: 1095–1108.

    Google Scholar 

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Stolk, E.A., Busschbach, J.J. & Vogels, T. Performance of the EuroQol in children with imperforate anus. Qual Life Res 9, 29–38 (2000). https://doi.org/10.1023/A:1008923029886

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  • DOI: https://doi.org/10.1023/A:1008923029886

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