Parental knowledge in the various domains
| Items | Correct (%) (95% CI) | Incomplete (%) (95% CI) | Incorrect (%) (95% CI) | Don’t know (%) (95% CI) |
|---|---|---|---|---|
| Nature of the heart disease and its treatment | ||||
| Name | 59.0 (51.3 to 66.7) | 33.3 (25.9 to 40.7) | 3.8 (0.8 to 6.8) | 3.8 (0.8 to 6.8) |
| Diagrammatic location | 28.8 (21.7 to 35.9) | 18.6 (12.5 to 24.7) | 22.4 (15.9 to 28.9) | 30.1 (22.9 to 37.3) |
| Aetiology | 47.4 (39.6 to 55.2) | 1.3 (0.0 to 3.1) | 4.5 (1.2 to 7.8) | 46.8 (39.0 to 54.6) |
| Hereditary nature | 64.1 (56.6 to 71.6) | 1.3 (0.0 to 3.1) | 8.3 (4.0 to 12.6) | 26.3 (19.4 to 33.7) |
| Symptoms | 51.3 (43.5 to 59.1) | 10.3 (5.5 to 15.1) | 28.8 (21.7 to 35.9) | 9.6 (5.0 to 14.2) |
| Treatments offered | 96.8 (94.0 to 99.6) | 3.2 (0.4 to 6.0) | 0.0 (0.0 to 0.0) | 0.0 (0.0 to 0.0) |
| Objectives of treatments | ||||
| Surgery (n = 97) | 82.5 (77.5 to 87.5) | 12.4 (5.8 to 19.0) | 2.1 (0.0 to 5.0) | 3.1 (0.0 to 6.5) |
| Interventional catheterisation (n = 32) | 90.6 (80.5 to 100.0) | 0.0 (0.0 to 0.0) | 0.0 (0.0 to 0.0) | 9.4 (0.0 to 19.5) |
| Medications (n = 56) | 44.6 (31.6 to 57.6) | 19.6 (9.2 to 30.0) | 16.1 (6.5 to 25.7) | 19.6 (9.2 to 30.0) |
| Side effects of medications (n = 56) | 7.1 (0.4 to 13.8) | 8.9 (1.4 to 16.4) | 19.6 (9.2 to 30.0) | 64.3 (51.8 to 76.8) |
| Impact of heart disease on exercise capacity | ||||
| Exercise prescription and need for exercise restriction | 59.0 (51.3 to 66.7) | 1.3 (0.0 to 3.1) | 35.9 (28.4 to 43.4) | 3.8 (0.8 to 6.8) |
| Infective endocarditis and its prevention | ||||
| Awareness of infective endocarditis | 26.9 (19.9 to 33.9) | 0.0 (0.0 to 0.0) | 0.0 (0.0 to 0.0) | 73.1 (66.1 to 80.1) |
| Symptoms of endocarditis (n = 42) | 28.6 (14.9 to 42.3) | 4.8 (0.0 to 11.3) | 0.0 (0.0 to 0.0) | 66.7 (52.4 to 81.0) |
| Risk factors of endocarditis (n = 42) | ||||
| Dental abscess | 50.0 (34.9 to 65.1) | 11.9 (2.1 to 21.7) | 38.1 (23.4 to 52.8) | |
| Contaminated needles | 35.7 (21.2 to 50.2) | 14.3 (3.7 to 24.9) | 50.0 (34.9 to 65.1) | |
| Skin infection | 31.0 (17.0 to 45.0) | 21.4 (9.0 to 33.8) | 47.6 (32.5 to 62.7) | |
| Poor nail and skin care | 26.2 (12.9 to 39.5) | 26.2 (12.9 to 39.5) | 47.6 (32.5 to 62.7) | |
| Body piercing and tattooing | 35.7 (21.2 to 50.2) | 16.7 (4.8 to 28.6) | 47.6 (32.5 to 62.7) | |