TableĀ 1

Content analysis of adult responses (n=37)

Current follow-up arrangements
Not receiving any follow-up15
Seen at local hospital by non-ACHD cardiologist/technician15
Seen in adult services since left GOSH, then lapsed7
Longest time without any heart related check-up40 years
Aware of current recommendations regarding follow-up0
Number of patients wanting referral for specialist follow-up14
Number not receiving follow-up who explicitly did not want it3
Requests for further written information/specific CHD websites4
  • ACHD, Adult Congenital Heart Disease;CHD,congenital heart disease.