Table 1

Diagnostic groupings and demographics of study participants

Study groupExamples of diagnoses includedParticipants (%)Male (%)Age years (mean±SD)Deprivation measure (mean±SD)Height SDS (mean±SD)Weight SDS (mean±SD)BMI SDS (mean±SD)Activity score (mean±SD)Minutes of MVPA per day (mean±SD)Duration of EST (mean±SD)
MajorCondition requiring surgical or catheter intervention104 (73.4)65 (61.9)15.5±2.2296.8±192.9−0.24±1.18−0.16±1.210.35±1.1115.2±3.730.9±24.611.0±3.5
MinorAll other conditions39 (26.6)21 (55.8)15.7±2.3306.8±190.9−0.00±0.950.35±1.110.42±1.1614.5±3.925.6±18.911.7±3.4
1. Minor CHD (no intervention)VSD, secundum ASD, aortic stenosis, pPulmonary stenosis, coarctation39 (27.3)21 (53.8)15.7±2.3306.8±190.9−0.00±0.950.35±1.110.42±1.1614.5±3.825.6±18.911.7±3.4
2. Acyanotic correctedVSD, secundum ASD, primum ASD, AVSD, aortic stenosis, pulmonary stenosis, coarctation, PDA61 (42.6)37 (60.7)15.2±2.3276.8±189.0−0.16±1.20−0.08±1.080.03±1.0015.4±3.633.9±26.511.4±3.4
3. Cyanotic correctedTAPVC, TGA (both arterial switch and mustard/senning repairs), truncus arteriosus, tetralogy of Fallot, pulmonary atresia30 (21.0)18 (60.0)16.2±1.9332.8±192.3−0.20±1.10−0.15±1.41−0.04±1.4415.3±4.130.8±22.011.5±3.0
4. Cyanotic palliatedHypoplastic left heart, tricuspid atresia, RV hypoplasia13 (9.1)9 (69.2)15.3±2.5378.8±187.4−0.75±1.22−0.66±1.21−0.32±1.3714.2±3.517.8±17.28.3±4.1
  • ASD, atrial septal defect; AVSD, atrioventricular septal defect; BMI, body mass index; CHD, congenital heart disease; MVPA, moderate to vigorous physical activity; RV, right ventricle; SDS, SD score; TAPVC, total anomalous pulmonary venous connection; TGA, transposition of the great arteries; VSD, ventricular septal defect.