Table 1

MyHeart scale

Question #QuestionQuestion formatMaximum score
1What is the name of your heart defect/condition?
Be as specific as possible.
Short answer6
2aHave you had any heart surgeries?
□ (a) Yes   □ (b) No   □ (c) Not sure (score 0)
If yes, how many have you had?
If yes, what was the name of the operation(s), or what did the surgeon do?
Multiple choice and short answer5 (1 if no prior heart surgery)
2bHave you had any heart catheterisations?
□ (a) Yes   □ (b) No   □ (c) Not sure (score 0)
If yes, how many have you had? __________
If yes, what were they for?
Multiple choice and short answer5 (1 if no prior heart catheterisation)
3Could you explain your heart defect to someone else?
□ (a) Not at all (0)    □ (b) A little (1)    □ (c) Yes (2)
Multiple choice2
4What are the medications you take for your heart, and what dose do you take?Short answer3 (1 if on no heart medication)
5What are the purposes/ reasons for your heart medications?Short answer2 (0 if on no heart medication)
6How long do you think you should be followed by a cardiologist who specialises in congenital heart disease?
□ (a) When new problems arise (0)
□ (b) For a few more years (0)
□ (c) For the rest of my life (2)
□ (d) I don't know (0)
Multiple choice2
7Do you need to take an antibiotic before you see a dentist?
□ (a) Yes   □ (b) No   □ (c) Don't know (0)
If ‘Yes’, why is this antibiotic recommended?
Multiple choice and short answer2 (1 if correct answer is ‘no’)
8Did you get help with answering these questions?
Yes, from (indicate all that apply)
   The internet
   A MyHealth passport
   Pamphlets/brochures previously given to me about my heart
   Other (please specify): ____________
No, I answered these questions from memory alone
Multiple choiceNot scored