Table 1

Participating networks/centres and number of patients

ContinentNetwork/centreNo. of patients
EuropeThe National Paediatric Pulmonary Hypertension Service UK
 Great Ormond Street Hospital for Children, London, UK
French Pediatric Pulmonary Hypertension Registry
 Necker Hospital for Sick Children, Paris, France
The Dutch National Referral Center for Pulmonary Hypertension in Childhood
 Beatrix Children's Hospital, University Medical Center Groningen, The Netherlands
The Spanish Registry for Pediatric Pulmonary
 University Hospital Ramon y Cajal, Madrid, Spain1
 University Hospital Doce de Octubre, Madrid, Spain2
 University Hospital Virgen del Rocio, Seville, Spain1
 University Hospital Vall d'Hebrón, Barcelona, Spain2
USAChildren's Hospital Colorado, Aurora, Colorado2