Mortality
| Cause of death | N (%) |
| Cardiac | |
| Congenital heart disease | 67 (38.1) |
| Valve disease, heart failure and other cardiac | 19 (10.8) |
| Endocarditis | 11 (6.3) |
| Myocardial infarction/ischaemic heart disease and stroke | 9 (5.1) |
| Non-cardiac | |
| Cancer | 35 (19.9) |
| Lung, GI/liver, endocrine, neurological and other non-cardiac disease | 16 (9.1) |
| Syndromes and other congenital diseases (non-cardiac) | 7 (4.0) |
| Infection | 3 (1.7) |
| Suicide, violence | 3 (1.7) |
| Unknown | 6 (3.4) |
| Total | 176 (100) |
Causes of death divided into cardiac and non-cardiac causes.
GI, gastrointestinal.