Table 2

Frequencies, timing and weights at each stage of the treatment pathway for FUH

Procedure categoryFrequency (%)Median age (IQR)Median length of stay (IQR)Median weight (kg) (IQR)Median weight-for-age z-score (IQR)
Prepathway212 (13.6)8.5 (2.5–34.1) days7.5 (2.5–20.5) days3.3 (2.8–3.8)−1.4 (−2.4 to −0.6)
Initial palliation1263 (81.1)11.5 (5.5–43.5) days12.3 (6.5–23.5) days3.3 (2.9–3.8)−1.6 (−2.6 to −0.8)
Cavopulmonary shunt stage1100 (70.6)9.2 (6.0–17.1) months6.5 (4.6–10.5) days7.7 (6.3–9.4)−1.6 (−2.5 to −0.8)
Fontan stage814 (52.3)56.2 (45.5–70.3) months11.5 (8.5–17.5) days16.2 (14.4–19.2)−0.8 (−1.6 to 0.1)
Comprehensive stage 2102 (6.6)10.0 (5.8–13.8) months7.5 (5.5–16.5) days7.5 (6.0–9.1)−2.0 (−2.9 to −0.8)
Heart transplant15 (1.0)7.7 (1.5–9.7) years20.5 (15.3–49.5) days19.8 (8.1–27.0)−1.8 (−1.9 to −0.5)
  • There were 11 missing length of stay values (1 for prepathway; 6 for stage 1; 3 for stage 2; 1 for stage 3).

  • There were 128 missing weights/weight-for-age z-scores (9 for prepathway; 74 for stage 1; 39 for stage 2; 4 for Fontan; 2 for comprehensive stage 2).

  • FUH, functionally univentricular heart.