Table 1

Observed survival in infancy, predicted survival throughout childhood, and predicted requirement for follow up in adult life

Observed infant survival Predicted survival 1 to 16 years References Predicted need for follow up beyond 16 years References
HLH0.000.008,91.00 2
MA0.800.40101.00 2
TA0.560.56101.00 2
DIV0.600.7110,111.00 2
PA/IVS0.430.7112,131.00 2
PA/VSD0.720.6612,14,151.00 2,15
Truncus0.340.9216,17,181.00 2
CTGA1.000.96191.00 2
CAVSD0.560.9620,21,221.00 2
TGA0.770.8723,24,251.00 2
TOF0.890.9426,27,281.00 2
P-AVSD0.790.9129,30,311.00 2
TAPVC0.730.9732,33,340.05 2
VSD (S)0.660.9735,36,370.10 2,55
AS (S)0.470.7935,38,391.00 2,38,39
PS (S)0.830.9735,40,410.25 2
CoA0.880.9835,42,431.00 2,42
ASD0.870.9735,44,450.05 2
PDA0.940.9935,460.00 2
MR0.570.9447,481.00 2
VSD (M)1.001.0037,490.10 2,55
AS (M)1.000.9439,45,501.00 2,45,50
PS (M)1.000.97450.10 2
Misc0.830.9551,52,53,540.75 2
Total0.82
  • AS (M), aortic stenosis with no intervention in infancy; AS (S), aortic stenosis with intervention or death in infancy; ASD, atrial septal defect; CAVSD, complete atrioventricular septal defect; CoA, Coarctation of aorta; CTGA, congenitally corrected transposition of the great arteries; DIV, double inlet ventricle; HLH, hypoplastic left heart; MA, mitral atresia; MR, mitral regurgitation; Misc, miscellaneous; PA/IVS, pulmonary atresia with intact ventricular septum; P-AVSD, partial atrioventricular septal defect; PA/VSD, pulmonary atresia with ventricular septal defect; PDA, patent ductus arteriosus; PS (M), pulmonary stenosis with no intervention in infancy; PS (S), pulmonary stenosis with intervention or death in infancy; TA, tricuspid atresia; TAPVC, total anomalous pulmonary venous connection; TGA, transposition of the great arteries; TOF, tetralogy of Fallot; Truncus, truncus arteriosus; VSD (M), ventricular septal defect with no intervention in infancy; VSD (S), ventricular septal defect with intervention or death in infancy.