Table 2

Observed cases, predicted survivors, and predicted need for follow up in adult life

	Live born diagnosed in infancy	Survivors at 12 months	Predicted survival 1 to 16 years	Predicted total survivors from infancy	Observed post infant diagnoses	Adjusted post infant diagnoses	Total survivors to 16 years	Predicted need for adult follow up	Predicted extra adult follow up	Adult follow up per 10 ^{5live births}	Extra adults per year in UK
HLH	54	0	0.00	0	0	0	0	1.00	0	0	0
MA	10	8	0.40	3	0	0	3	1.00	3	1	6
TA	23	13	0.56	7	0	0	7	1.00	7	2	14
DIV	30	18	0.71	13	0	0	13	1.00	13	3	27
PA/IVS	21	9	0.71	6	0	0	6	1.00	6	2	12
PA/VSD	39	28	0.66	18	0	0	18	1.00	18	5	37
Truncus	35	12	0.92	11	0	0	11	1.00	11	3	22
CTGA	17	17	0.96	16	0	0	16	1.00	16	4	33
CAVSD	104	58	0.96	57	1	1	58	1.00	58	15	119
TGA	113	87	0.87	76	0	0	76	1.00	76	20	156
TOF	113	101	0.94	95	3	3	98	1.00	98	26	202
P-AVSD	29	23	0.91	21	15	15	36	1.00	36	10	74
TAPVC	33	24	0.97	23	2	2	25	0.05	3	1	6
VSD (S)	182	121	0.97	117	0	0	117	0.10	12	3	25
AS (S)	36	17	0.79	13	0	0	13	1.00	13	3	27
PS (S)	46	38	0.97	37	0	0	37	0.25	9	2	19
CoA	90	79	0.98	77	29	40	117	1.00	117	31	241
ASD	84	73	0.97	71	105	119	190	0.05	10	3	21
PDA	95	89	0.99	88	99	109	197	0.00	0	0	0
MR	7	4	0.94	4	24	29	33	1.00	33	9	68
VSD (M)	577	577	1.00	577	185	206	783	0.10	78	21	160
AS (M)	38	38	0.94	36	42	44	80	1.00	80	21	164
PS (M)	97	97	0.97	94	64	69	163	0.10	16	4	33
Misc	69	57	0.95	54	36	41	95	0.75	71	19	146
Total	1942	1588		1514	605	678	2192		784	208	1612