Table 1

Demographic and clinical characteristics of 62 adult patients with congenital heart disease

 Male47  (75.8%)
 Female15 (24.2%)
Median age (years)23 (Q1=21; Q3=28); range 18–46
Civil state
 Unmarried (living with parents)34 (54.8%)
 Living alone or divorced8 (12.9%)
 Married or living together20 (32.3%)
Highest educational level
 Vocational high school22 (35.5%)
 (Technical) high school16 (25.8%)
 College/University24 (39.2%)
Employment status
 Student18 (29.0%)
 Blue collar worker22 (35.5%)
 White collar worker15 (24.2%)
 Other7 (11.3%)
Primary medical diagnosis
 Coarctation of the aorta16 (25.8%)
 Tetralogy of Fallot14 (22.6%)
 Congenital stenosis of the aortic valve12 (19.4%)
 Transposition of great vessels7 (11.3%)
 Ventricular septal defect5 (8.1%)
 Atrial septal defect1 (1.6%)
 Other7 (11.3%)
 No treatment8.2%
 Catheter intervention6.6%
 Surgery and catheter intervention11.5%
 Surgery and drugs8.2%
 Surgery, catheter intervention and drugs1.6%
Frequency of follow up
 Every six months3.2%
 Every year62.9%
 Every 18 months3.2%
 Every two years9.7%
 Every three years12.9%
 Every four years1.6%
 Every five years6.5%
History of endocarditis
 Yes2 (3.2%)
 No60 (96.8%)
Responsible for the daily management of care
 Patient40 (64.5%)
 Patient and family or GP22 (35.5%)
  • GP, general practitioner.