Prevalence and patterns of retention in cardiac care in young adults with congenital heart disease

Mark D Norris; Gary Webb; Dennis Drotar; Asher Lisec; Jesse Pratt; Eileen King; Fadeke Akanbi; Bradley S Marino

doi:10.1016/j.jpeds.2013.04.012

Prevalence and patterns of retention in cardiac care in young adults with congenital heart disease

J Pediatr. 2013 Sep;163(3):902-4.e1. doi: 10.1016/j.jpeds.2013.04.012. Epub 2013 May 16.

Authors

Mark D Norris¹, Gary Webb, Dennis Drotar, Asher Lisec, Jesse Pratt, Eileen King, Fadeke Akanbi, Bradley S Marino

Affiliation

¹ Division of Pediatric Cardiology, Department of Pediatrics and Communicable Diseases, CS Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA. manorris@med.umich.edu

PMID: 23684108
DOI: 10.1016/j.jpeds.2013.04.012

Abstract

The population with adult congenital heart disease is expanding. Cardiac care retention and follow-up patterns were assessed in 153 adults with congenital heart disease (median age, 24.5 years), previously compliant as teenagers. The majority (125; 81.7%) were retained in care, most often by a pediatric cardiologist (69%). The rate of retention was surprisingly high.

Keywords: CHD; Congenital heart disease.

Publication types

Evaluation Study
Research Support, Non-U.S. Gov't

MeSH terms

Adolescent
Adult
Cardiology
Female
Follow-Up Studies
Health Care Surveys
Heart Defects, Congenital / therapy*
Humans
Male
Ohio
Patient Acceptance of Health Care / statistics & numerical data*
Retrospective Studies
Transition to Adult Care / statistics & numerical data*
Young Adult