The road to hell is paved with good intentions: the experience of applying for national data for linkage and suggestions for improvement

JA Taylor, S Crowe, FE Pujol, RC Franklin… - Bmj Open, 2021 - bmjopen.bmj.com
Background We can improve healthcare services by better understanding current provision.
One way to understand this is by linking data sets from clinical and national audits, national …

Clinical characteristics, activity levels and mental health problems in children with long coronavirus disease: a survey of 510 children

D Buonsenso, FE Pujol, D Munblit, D Pata… - Future …, 2022 - Future Medicine
Background: Whether long coronavirus disease pertains to children as well is not yet clear.
Methods: The authors performed a survey in children suffering from persistent symptoms …

Cohort study of intervened functionally univentricular heart in England and Wales (2000–2018)

E Hadjicosta, R Franklin, A Seale, O Stumper, V Tsang… - Heart, 2022 - heart.bmj.com
Objective Given the paucity of long-term outcome data for complex congenital heart disease
(CHD), we aimed to describe the treatment pathways and survival for patients who started …

[HTML][HTML] Trends in survival of older care home residents in England: a 10-year multi-cohort study

FE Pujol, R Hancock, M Morciano - Social Science & Medicine, 2021 - Elsevier
Increases in longevity combined with a policy emphasis on caring for older people in their
own homes could have widened or narrowed the survival gap between care home and …

Arterial switch for transposition of the great arteries: treatment timing, late outcomes, and risk factors

DM Dorobantu, F Espuny Pujol, M Kostolny, KL Brown… - JACC: Advances, 2023 - jacc.org
Background Reports of long-term mortality and reintervention after transposition of the great
arteries with intact ventricular septum treatment, although favorable, are mostly limited to …

Risk factors for reintervention with functionally single-ventricle disease undergoing staged palliation in England and Wales: a retrospective cohort study

Q Huang, D Ridout, V Tsang, NE Drury, TJ Jones… - Circulation, 2023 - Am Heart Assoc
Our study aimed to evaluate population-based rates of, and risk factors for, cardiac
reinterventions in children with functionally single-ventricle (f-SV) congenital heart disease …

[HTML][HTML] Long-term survival and center volume for functionally single-ventricle congenital heart disease in England and Wales

KL Brown, Q Huang, E Hadjicosta, AN Seale… - The Journal of Thoracic …, 2023 - Elsevier
Objectives Long-term survival is an important metric for health care evaluation, especially in
functionally single-ventricle (f-SV) congenital heart disease (CHD). This study's aim was to …

Linkage of national congenital heart disease audit data to Hospital, critical care and mortality national data sets to enable research focused on quality improvement

FE Pujol, C Pagel, KL Brown, JC Doidge… - BMJ open, 2022 - bmjopen.bmj.com
Objectives To link five national data sets (three registries, two administrative) and create
longitudinal healthcare trajectories for patients with congenital heart disease (CHD) …

[HTML][HTML] Hospital resource utilization in a national cohort of functionally single ventricle patients undergoing surgical treatment

DM Dorobantu, Q Huang, FE Pujol, KL Brown… - JTCVS open, 2023 - Elsevier
Objective The study objective was to provide a detailed overview of health resource use
from birth to 18 years old for patients with functionally single ventricles and identify …

Market concentration, supply, quality and prices paid by local authorities in the English care home market

F Espuny Pujol, R Hancock, M Hviid… - Health …, 2021 - Wiley Online Library
We investigate the impact of exogenous local conditions which favor high market
concentration on supply, price and quality in local markets for care homes for older people in …